Tomas has Pelizaeus Merzbacher Disease, a rare generic condition where the fatty tissue of his brain didn’t grown. PMD can affect vision, hearing, communication, motor skills and intellectual ability. In extreme cases, suffers can die before reaching adolescence. There is currently no charity for PMD in the UK and Triumph for Tomas aims to become a registered charity to help raise awareness of PMD and create a fun for people to use to buy specialist equipment and toys.
